 |
Hey look, actual friends this time |
So here I am on a Thursday night this time, sitting in a coffee
shop with friends, allowing my thoughts to
flow from my brain to my hands, trying to form sentences of all the random
things that constantly flow through my head. My original goal was to post a
new blog every week on Sundays, however I was a little late this week due to
the fact that I am a college kid and what can you expect? Not that I had an
overflowing amount of homework or anything to do on Sunday, which is actually very unusual for me, but because my Netflix addiction took precedence over my
writing for the day.
But you know what? Its actually okay that I waited, and I’m glad
I did because of something that I had learned in class on Monday. In my
business culture class on Monday, two of the topics we discussed were
universalism, and how different cultures deal with disabilities. I found this
so suiting to the topic for my post this week.
 |
At a Selena Gomez concert for Megan's 16th birthday present from me |
Not trying to give a little business culture lesson here for ya,
but so that you get the jist of it, individualistic cultures view people with
disabilities as equals. A person that has a disability likes being dependent, doesn't necessarily feel the need to ask for help constantly, and plans for a future no
different than that of a person without a disability. And universalism, as I can
best explain it, basically refers to The Golden Rule. Which ties in ohhhhh so
perfectly with my topic this week about Miguel being no different that you and I.
Side note, I should add that Miguel calls herself Megan Gomez.
So if you're reading this, Megan, you can't be mad at me now. You’re welcome, Miss Gomez.
AND SORRY I KNOW I’M BAD WITH HAVING REALLY LONG INTROS, FORGIVE ME.
So, yeah, Megan is just like you and I. How so? Better question: How
not so? I think a lot of people believe that living with someone with a disability
is just a completely different world than living with a “normal” person. Because
there is such a thing as a “normal” person, right? I mean all of us “normal”
people are different from each other, just the same as Megan is different than
us. But note that she’s not different because she has Down Syndrome, she is
different because she is who she is. She is Megan Gomez; she is the movie-watching-master;
she is my little shit; she is my BFF; she is the sister to Selena Gomez,
obviously; she is…; she is…; she is…
What I am trying to get at with this is that Megan isn't different
because of her disability- which, by the way, I don’t even like calling it
that. Having Down Syndrome doesn't define who she is, it is barely even a
characteristic to describe her. I just view it as something she was born with.
No different than me not defining myself based on the birth mark right above my
butt that I was born with. Sorry, guys, no picture for this one.
And I know that people would never ask me straight up what it is
like living with her, or if it is difficult or if I treat her differently, or
etc. etc. And it is perfectly normal for people to have those thoughts. I guess
I probably would too if I were in different shoes. So don’t be afraid to ask me
about my sister. I’ll tell you straight up how I feel and I won’t take offense
to it. And my answer to you would be that living with Megan is no different
than living with anyone else, like my brother, for example. Maybe this
isn't true for all families that have a child with a disability, though, and
maybe it is just the individualist culture that I grew up in or the way that I was
brought up that makes me act this way towards her. Either way, I find myself
responding to people’s questions with, well
how do you think living with her is? Should I be giving her special care just
because she isn't “normal”?
Because let’s be real, my brother can be a little shit, no
different than Megan. And Dean and I fight like brothers and sisters do
sometimes, no different than Megan and I fight like sisters do. Dean and I have
our differences, no different than Megan and I’s differences. Sure, sometimes
processes may be a little slower with her or it make take longer for both of us
to comprehend what the other is saying, but so? That doesn't mean anything. And of course, she's the typical little sibling that has to copy everything her older sibling does. I haven't decided yet if this is a good thing or not, though. I often catch her watching me while I am getting ready, and then she'll do the exact same things that I do. I'll even randomly find some of my missing things hidden in the drawers of her room- my lip glosses, make up, clothes. And
don’t even get me started on how she isn't different than any other teenager.
 |
NOT a rare sighting in the Stier household |
Okay, you got me started. She talks, dresses, acts, and even walks
like any ol’ teenager does. She’s got attitude, definite attitude majority of
the time. Like, I finally know how my parents felt when I was a bratty little
teenager back in the day. Ha..ha.. sorry mom and dad.. But she even needs to
make sure she looks the part every day, and she can never forget to wear one of
her infamous headbands. She acts like a teenager with all of the smart-ass one-liners
she throws out and with the sassiness and with the independence and with the
leave-me-alone-you’re-embarrassing- me-and-I’m-too-cool-for-you motto. And yes, I
can say that she does even walk like a teenager, gotta have that attitude and
butt wiggle with the walk. And the occasional striking of random poses just for the heck
of it- hip to the side, one hand on the hip, the other hand raised, fierce look
on her face.
Annnnd the selfies! Okay, half the time I kind of force her to
take pictures with me because I like pictures, but she usually cooperates. And when
she doesn't, well, you’ll know because she won’t be smiling in the picture.
Long story, short.
-
Don’t be afraid to ask me about Megan
-
She honestly isn't any different than you and
I
-
Don’t let one characteristic define someone
-
And her name is actually Megan Gomez, not
Stier, because she isn't a Stier, she is actually Selena Gomez’s sister
In the end, I believe everyone should embrace an individualistic
culture (feel free to ask me anything about it, because I’m basically a pro on that
subject now) and embrace universalism. The Golden Rule.
An insight into next week’s post:
Well, there isn't an insight yet. My brain is fried from countless
hours of Calc homework so I need some ideas from others on what I should write
about next.